Brooke Eby, the TikTok star who used humor to share the devastating realities of living with ALS, has died at the age of 37. The ALS Network announced her passing on Thursday, October 1st. Tributes followed for the young woman whose humorous videos reached hundreds of thousands of followers and brought other patients together.
Eby received her diagnosis in March 2022, when she was 33, after roughly four years of unexplained symptoms. Known online as “Limpbroozkit,” she documented her experience on TikTok and Instagram as the disease progressed. ALS, also called Lou Gehrig’s disease, is a terminal neurodegenerative illness that causes worsening muscle weakness. Her posts showed viewers how that decline affected ordinary activities and her ability to live independently.
Her videos covered subjects ranging from dating to taste-testing medication, often finding something funny in situations that were otherwise painful to discuss. She answered questions about the disease and shared advice she would have given her younger self. In a 2023 TODAY interview, Eby described her approach in four words: “Levity is my superpower.”
Salesforce CEO Marc Benioff was among those who paid tribute to Eby, who had worked at the company for a decade. In a post on X, he remembered her as “an amazing warrior with an attitude so positive it could melt a glacier.” He shared a photograph of them together and extended his thoughts to her loved ones.
In her 2024 interview with USA TODAY, Eby described moving back into her childhood home because she increasingly needed help. Her parents adapted their home around her changing abilities. When she could no longer reach the shower’s hot-water control, her father built a pulley system. “It’s just constant adaptation,” she said. “But if you have family or support around you, it makes it way, way easier.”
Eby also spoke about how difficult the diagnosis had been for her family to accept. During the search for answers, they questioned doctors’ assessments and struggled to believe what was happening. She said watching a loved one decline could be especially hard because relatives felt helpless. For herself, she tried to make use of days when she felt mentally well.
Finding other patients her age gave Eby people who understood concerns that her healthy friends often couldn’t share. Her first local support group consisted largely of older men, with few other women. She later connected with women who had been diagnosed before 35. Those friendships came with the painful knowledge that their time together could be short.
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Watch Eby discuss living with ALS and the humor she shared with her followers here:
Her advocacy earned her the ALS Network’s Dean and Kathleen Rasmussen Advocate of the Year Award in June 2026. Accepting the honor, she said, “I didn’t choose ALS, but I did choose to get loud, and be irreverent about it.” She thanked the organization for recognizing her work and said the award showed that her approach was helping people.
As NPR recounted, Eby continued joking as the disease affected her swallowing and speech. She teased the choice of the word “bulbar” to describe speech-related symptoms because the word itself was difficult to pronounce. Her videos continued explaining changes in her condition while retaining the humor followers had come to recognize.
Eby also founded ALStogether, a hub connecting patients with one another and with caregivers, experts and resources. In her January 2025 personal essay for PEOPLE, she explained why she wanted her videos to remain available after her death. She hoped future patients could watch them to understand experiences they had yet to face. “I hope it serves as a visual diary for anyone who gets diagnosed and needs a guide.”
Featured image credit: screengrab from the embedded video.